Wednesday, January 3, 2024

More Miracles - Part 2

Given Little Faith's relatively subtle features of down syndrome, and my young age, the Down Syndrome specialists was open to performing a genetic test to verify the diagnosis. 


It turned out to be positive, correlating with previous tests. 


Some people may say that I'm really unlucky - Still relatively young and shouldn't have been at high risk of having a child with Down Syndrome. 
Yet it happened.


Maybe, we were specially chosen for this - to be parents of Little Faith. 

But, being able to come to this level of acceptance is a miracle in itself.

To be honest, up to the time when genetic tests confirmed her diagnosis, I was still hoping for a miracle - that the antenatal tests were wrong. When she was born, her physical and developmental features were so subtle - she was so bright and interactive - that I had a hope that perhaps there must have been some mistake. 

If you know me, I'm a perfectionist at work, sports and life and always aim for excellence by secular standards. To know that my child whom I have great aspirations for has down syndrome - a condition of low IQ and many physical challenges is very hard for me to accept. 
 

I would have thought that I'd breakdown when confirmatory results were out. On the contrary, it gave me closure and peace

Latest events reminded that none of these happened by coincidence. The fact that I'm relatively young and still got hit anyway - it was a special arrangement. 
God wanted me to have a down syndrome baby. 

The road ahead will not be easy. But that knowledge has given me the determination to walk on by Faith - not by fear or worries.

And so, I suppose it is time I begin to wholeheartedly embrace this special condition of Little Faith - watching how she grows and holding my breath at every milestone, witnessing God's daily grace upon her - Not by worldly terms but by God's terms alone. 

This is gonna be one heck of a ride, a spiritual-led journey of parenthood - one that relies wholeheartedly on God's providence, every step of the way. 




More Miracles - Part 1


We started the year with two major appointments since Little Faith's birth - her first heart appointment and rescan, and Down syndrome specialist follow up where genetic tests results were revealed. 



I am both shocked and elated to share that her heart valve defect has miraculously gone from severe to trivial grade! Even the other associating problems like right heart enlargement, pulmonary hypertension are gone. Heart size and function are now normal. No need for surgery! 

Even the radiologists were puzzled and double-checked with records and fellow colleagues to be sure. 

The only problem left is a bridging between two of her heart vessels that was found to be large at birth (Patent ductus arteriosus). Now it is moderate in size. This condition can be found in even some normal newborns but should eventually close with time. Hers is taking a while to close. So, still requires monitoring. Even if surgical intervention is required, it should not be as major as one for her initial main heart problem. 

Alot to be thankful for! 

To be continued at part 2...