Our Little Miracle Baby's Progress

Day 0: Little Faith is born.

Little Faith was born and was whisked immediately to ICU as planned. Sadly we didn't get to hold her because of this. 

While I was recovering in the delivery suite, David was in ICU with the neonatal team. He sent me a video of her crying after they had inserted the various tubes/central lines, as per routine ICU care.

She had an apparent look of distress and was closing her eyes. David then called her by name endearingly, the way he usually does when she was in my tummy - She then opened her eyes, and cried very bitterly - as though feeling sorry for herself and relieved that her loving Daddy is here.

That really broke my heart.

Thankfully, Little Faith didn't need a breathing tube to maintain oxygenation and it was soon removed.  The Cardio doctors were really amazed that she didn't need any cardiopulmonary support or related drugs.

Day 1:

Little Faith looks less battled today. She looked absolutely at peace and comfortable - her oxygenation got even better and the team soon transferred her from ICU to recovery unit. (We were previously told she would need ICU for at least 2-3 weeks to months). Look at her grabbing my lil finger. 😋

Day 2:

Little Faith was wide awake for the first time when we saw her. I almost couldn't recognize her! 

The amazing thing is that she didn't have apparent features of down syndrome, and looks just like a normal, healthy baby. 

She smiled when she heard our voices. She's started bottle feeding and had such good suckle that they removed the feeding tube immediately after this pic. We could start breastfeeding immediately.. something that we had previously thought was impossible given her heart condition/down syndrome.

This was also the first time I got to hold my Little Faith.

Day 3:

Today, she surprised us with a perfect SpO2 (oxygen saturation level) of 100%, something quite unthinkable for anyone with Ebstein's anomaly. She seems to be in the pink of health despite having a 'blue baby' condition. 

One of the kind antenatal doctors who followed us through our journey was so surprised to see how things turned out she remarked that our faith (in God) really worked. 

Little Faith is stronger than we can ever imagine! 

Praise be to God! 🙌

Thank you to all for all your prayers, love and providence! Such amazing grace we've had over the past few days!